Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, June 20, 2005

Complications

A couple of snags. I believe that the combination of drugs I have been taking has pushed my blood pressure (which naturally runs low) even lower, which is causing me to be light-headed and fatigued. In addition, all of the bedrest has moved the edema back into my midsection, causing bloating and some abdominal pain.

The last three mornings have been hell. For some reason, I seem to feel better as the day progresses.

I'm really hoping that the BUSM will do something to neutralize these issues when I start my pre-treatment checkups on Wednesday.

My mother has arrived from New York, and we are staying at the Best Western Roundhouse Suites in Roxbury. We are staying there indefinitely until we find a short-term housing solution in the South End.

2 Comments:

At 6/21/2005 10:30 AM , Anonymous Anonymous said...

Fight it like a Viking!
Runar

 
At 6/21/2005 11:57 AM , Anonymous Anonymous said...

Tony-Really appreciate your updates on this site as we're all concerned and want to know how you're doing and how the battle goes. Hang tough tomorrow and know you have alot of support behind you to prop you up if you feel down. You will persevere! All the best-Coolidge bud

 

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