Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Tuesday, June 14, 2005

My Best Monty Python Imitation



Yes, amazing simularity.

This is peripheral edema. I've developed what appears to be heat / allergic reactions all over my feet. The edema runs up my legs to my waist. It is not health-threatening at this stage, but all of that fluid makes it difficult to walk. Putting on my shoes is now very difficult. When I move from room to room, it's more like a waddle.

A friend of mine referred me to a good attorney to get some vital legal documents drawn. Although I expect to survive treatment, you always have to prepare for the worst.

I'm making the following legal documents in preparation for my treatment:

  • Health Care Proxy: This appoints someone to make health decisions for me in the event I am unable / not fit to do so.
  • Living Will: Also called a 'medical directive'. Discusses in detail the types of actions doctors will take it my behalf under a number of different conditions. We all know what happens when you are sick and you don't have one.
  • Will: Division of your estate in case I die during or after treatment. Estate division without an active will can be messy and expensive.
  • Power of Attorney: This will allow me to designate a person/people to make legal decisions for me, or act of my behalf. This can mean anything from signing a check to writing a loan in my name. I'm getting one just in case I have some business issues that I cannot attend to during my treatment.

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