Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Tuesday, June 28, 2005

Tough Day

Yesterday was not fun. I completed the plasma extraction and received a third round of growth factors. The bone pain in my legs and hips was unbearable, and started to cause uncontrollable nausea.

Believe it or not, this is a normal response. My body is reacting very positively to the growth factors, and the stronger the response, the more side effects you can get. My white blood cell count is now over 75 times above normal. My body feels like it is on overdrive.

Now that I've created all of these cells, they will start collecting them through the same machine today. This process takes about 5 hours. At the end of the procedure they will count the stem cells collected, and it they don't have enough for the reinsertion, they will collect some more tomorrow.

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