Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Saturday, June 25, 2005

Weekend Shots

No rest for the weekend - I've been scheduled for some neupogen shots today and tomorrow. The first one was earlier this afternoon, and the second one is scheduled for tomorrow morning.

Here's a little science. Neupogen, or what my stepmother jokingly refers to as "the $3,000 shot", is a human granulocyte colony stimulating factor (G-CSF). Essentially, it's a DNA-engineered drug that causes your body to start making many, many white blood cells. These blood cells are then collected and stored for reinsertion after the chemotherapy. I will get the shots now to assist with collection, then after the stem cell transplant to boost up the new reinforcements.

Common side-effects with this drug are bone pain all over your body, as your bones will 'burst at the seams' with white blood cells. It has been 3 hours, and I'm not having any problems so far.

I found this article online about the challenges of a 52 year-old doctor with primary amyloidosis that you might find interesting. It discusses Neupogen and the major role stem-cell transplants have in battling this disease.

1 Comments:

At 6/26/2005 9:22 AM , Anonymous Anonymous said...

Anthony-
I have been following your website and reading about you daily. Every night when I go to bed, you are in my prayers. Amy (my wife) and I think about you often through out the day, and wish all the best for you. This will be a tough journey, but I know you can do this! We will continue to pray and think of you......
You must stay positive and strong (I know easier said then done), but a positive approach can make all of the difference.
Love your cousin,
Rich (and Amy)

 

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