Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, July 25, 2005

Day +17, Hospital Overtime

The clinic printed me out a custom calendar detailing the important days of my treatment. This week it is a cryptic 'Tenative Departure in 1-3 weeks'. I've made it over the hump, finished the standard game, and now I'm into overtime. This means less visits to the clinic on a weekly basis.

The Boston Medical Center Amyloid Clinic has been so good to me over these last few weeks. I've been going daily at around 8:30-9:00 am each morning. I've given my car to my stepmother Janice, who in turn promises to drive me to my sessions each morning, and makes sure my car gets some road time. It would just get depressed just sitting in a parking lot. But I digress.

You get to the clinic, which is on the third floor of the Preston Building. Walk in, take a seat. My nurses give you 5-star treatment as you are in a private room laying in a bed within 10 minutes of arrival. Blood is taken, and I am worked on immediately with fluids or whatever is required for my that day. I sit in bed for a couple hours, or I will walk around a bit, until about 12:30pm, when Dr. Seldin, my doctor comes around to check you out to go over your blood tests, and from here you either leave or take more fluids based on what he says. Lunch is served. You then are free to go home in the mid-afternoon.

To be honest, it has become a second home for me, and as I come to the end of the critical portion I am depressed that I won't be making daily visits anymore. So many nice people, and of course, the 5-star treatment! I don't get a mint on the pillow, but they provide me with a clean urinal each day, so it's all good.

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