Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Friday, July 01, 2005

No Rest For The Bloated

So much for a hospital-free July 4th weekend. I'm been scheduled for appointments over the weekend due to my edema, which has been trouble to manage lately. It's very important to get it down as they cannot start my chemo on Tuesday if it is not under control.

I'm now in my new apartment on Commonwealth Avenue. It's nice to finally get out of the hotel room. My good friends Gary from Iceland and Denise from Florida have flown in, and have been moving my stuff of my old apartment while I've been in the hospital while I get treatment. I have been so thankful for everyone's help as I've had been so burdened physically and mentally over the last few weeks.

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