Amyloidosis Support Group Meeting
The New England Amyloidosis Support Network is holding a support group meeting this Saturday at the Boston Medical Center. If you are in the area and a patient (or merely interested), we'd love to see you. You can learn more details on the Amyloidosis Support Network website.
Day + 31 came and went without too much excitement. I haven't taken any diuretics for three days, yet my weight is holding steady. However, everything isn't so rosy and cheery, as I learned. Here's was my conversation with my doctor today:
Doctor: How did your weight hold up over the weekend?OK... so I dramatized it a bit, but that's how I felt it went. Since they drained most of the fluid off of me to allow my body to stabilize, the doctor feels that proper course of action is to allow my body to remove the remainder naturally. It sounds reasonable, but I was really hoping to get back to baseline and remove the duck feet very soon. Now as a result of my exuberance, I'll be hobbling around like a stunt extra from Dawn of the Dead for the rest of the summer.
Me: Glad you asked, Doc. I haven't taken any diuretics for three days, yet my weight is no longer going up!
Doctor: Great! I guess we'll cut you off the good diuretics every day and let you lose the last 7 pounds naturally over the course of several months.
Me (angry): Me... need WATER PILLS!!! (grabs needle and attempts to stab doctor)
I'm happy to report another "first" today: my first day after treatment without taking a single nap. This is very big, considering I average about three of them a day. I'm a little tired tonight, but it is tired in a good way. An increasing energy level is a good next step.
Potential "last" visit to doctor on Thursday to see how I'm doing before they let me go. There's a couple issues they still want to watch. My platelet counts recovered from the treatment, but has continued to grow and multiply to extremely high levels. This could mean a number of things, such as infection, internal swelling or other nasty things. But since I look good and haven't keeled over yet, all they can do is wait and see.
posted by Tony @ 10:21 PM |
4 Comments:
God bless that sense of humor.
Keep up that good fight, you sound like you are doing very well. It is a long road to recovery but keep positive and never give up. Now is the time to push yourself a little bit to build yourself back up. Love and prayers.
PS: Hi Patty, I do believe that "Mothers Love and care" has a lot to do with how well Anthony is doing. Great Job!
IT IS AWESOME TO SEE YOU DOING WELL. IT IS TRULY INSPIRATIONAL TO SEE YOU STAY SO POSITIVE THROUGHOUT THIS WHOLE ORDEAL. CONTINUE TO STAY STRONG.
I have to leave my amazement at the door too. You really have handled this with amazing humor, even when the rest of us were nervous.....
The scary days are over I think, and I am pretty sure the old Tony is back! Or should I say the new improved Tony??!!?? *grin*
I will give you a call soon!
Tony, it is great to see that you are almost back to normal. Even if normal is all relative depending on things.
Keep it up !! At this rate all of this will be a mere after thought....
Cheers !
--Eric
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