Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Saturday, August 20, 2005

Free At Last (No, Really)

Yesterday something amazing happened. My doctors removed the shackles and finally released me from the clinic. I tell you, it's been a long six weeks. My cell counts are normalizing, the shingles rash is going away, and at least the edema is in check for now.

Now begins the hard part of healing. This will actually be more difficult to do now for the following reasons:
  • When I was going to the clinic, I was forced to get up and... go. There's no such motivation for me now; I'll have to make my own motivation.
  • I'm starting to get spurts of energy, however, they last no more than an hour or so before having to wind down. This is very frustrating. At least when I started treatment I was too tired to complain.
As you can tell by the increasing gaps in my posts, it's been difficult to get motivated to post on a regular basis. I cannot promise but hope that I will become more regular once my motivation becomes a little better.

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