Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, September 05, 2005

Day + 59, Labor Day

To borrow a quote from Twain, the reports of my death have been greatly exaggerated. Two obstacles have been in my path preventing me from posting over the past few days.

First, I've had a slight relapse of sorts, dealing with my low blood pressure. Blame it on my new surroundings, or recent laziness, but I've had blood circulation issues over the last few days. It's a miserable feeling as you get body pains sleeping or sitting the wrong way. Sometime as innocent as sleeping on your side will force you to wake up in the middle of the night with pins-and-needles in your arm and side. This is something that I experienced the few weeks after my treatment. You have no choice but to lay on your back with your arms on each side, blankets wrapped around me like an Egyptian mummy. I was thinking of painting hieroglyphics on the walls to add to the theme. Needless to say, it has left me miserable.

Second, the Internet connection at my aunt's house is not, well, very good. It goes up and down faster than the gas prices here, with the exception that my connection is usually going down. We think that some squirrel made my data line to the outside world his lunch. Hopefully someone can get that fixed quick, as it is making me nutty. That's another blog I'll have to make: Tony's "Life Without Internet" blog.

Have you ever seen the skit where an old jalopy pulls up to the curb, filled with clowns? The door opens, and clowns of all shapes and sizes come walking out. And keeping coming out. You think to yourself, "how did all those clowns fit into that car?" Finally, the last one comes out, about 150 clowns later. That has been the story with my edema -- continuing to lose fluid but with little visual changes in my legs. I've been asking the same question: just where is all this fluid being kept? I've lost nearly 28 pounds (12.7 kg) of fluid in the last month, and I am still not finished yet.

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