Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Wednesday, September 14, 2005

Day + 68, Zzzzzzz

Every morning at 6:45am, the alarm on my phone goes off with a loud beep, reminding me to wake up and take my first medications of the day. It's a ritual that I've been performing for the last couple of months. Once I am up and taken the medicine, it's quite difficult to go back to sleep. Like a farmer just woken up by a rooster, I swear a couple of times, then resign myself to the fact that this is the start of my day. I get a cup of coffee and read the local newspaper here, which is only 20 pages or so. But it's got a full page of comics in color, so it's all good.

This morning, I couldn't do it. The alarm woke me up this morning, and I immediately felt a sinus headache and general, well, crappiness. I downed the pills and went back to sleep.

It's been like this for the last few days, since the latest heat wave. Summer is definitely not dead yet. The heat acts on my edema in the worst way. I start to swell and get circulation issues. Like a dog, I'll just crawl into a corner and nap the day away. It's a miserable feeling. While I will mourn the passing of the summer, I secretly await for fall to come so that I'm no longer as miserable as I have been.

Crap. I only have enough midodrine to last me until tomorrow morning, and my prescription expired. I'll need to call someone to renew it today.

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