Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Wednesday, September 21, 2005

Day + 75, Back To New York?

It's been three days since I took my last regimen of water pills, and while I'm not at the pinnancle health, I feel much better than I did yesterday. It's quite apparent that it is the water pills which are what are making me very sick and miserable.

I got a response from the people over at BMC this afternoon. Good news: They agree with me that the strength of the water pills that I am taking are now too much, and the prescription should be adjusted. Bad news: since I've been discharged, I'm no longer a 'patient' there, and the doctors cannot officially change my regimen for malpractice reasons.

You see, once a patient is discharged, treatment is handed off from the team at BMC to the patient's personal physicans. This would mean that I need to contact and see my doctors to get an official adjustment. I've placed a call with my nephologist back home in Boston for further guidance.

And this is what I had feared most when I came to New York three weeks ago -- that I might need to make the four hour trip back to Boston if I needed to see one of my doctors. My insurance is no good outside of Massachusetts, so I'd have to make the trip back home.

I'm awaiting a call from the nephrologist to find out whether he can change it over the phone, or if I'll need to go back to Boston to see him. I'm considering going back permanently if this is the case.

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