Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, October 17, 2005

Day + 101, The Experiment

Yesterday was a very good day, and it marked only the second day since the transplant where my energy level was anything close to normal. Taking advantage of this, I was able to stay on my feet most of the day.

Excited about this new source of strength, and eager to get back to my old self, I decided that today I would attempt to do a dry-run of a living a normal day... you know, one that doesn't involve spending 4 hours laying down in front of the TV watching the Discovery Channel.

The experiment got off to a good start, as I woke up at 6:30 in the morning, full of vim and vigor. Hopped in the shower and dressed by 7:30. Went for my morning walk, then back for breakfast. At 9:00 I started to do some alternating work on the computer and cleaning up of my room. Man, when I move, I can move.

I was able to consolidate and pack boxes of medical supplies that I collected and bought over the last few months. Latex gloves, masks, band-aids, Q-tips, all different types of drugs. Pulled out what I needed and packed the rest in case I need to go through this again. Just as I was finished, I started to get sick from the over-activity.

So, for me, it's back on the couch watching TV this afternoon. Maybe I'll try again tomorrow.

2 Comments:

At 10/17/2005 2:45 PM , Anonymous Anonymous said...

Tony - thank you so much for sharing what you are going through. I'm glad that things appear to be getting better.

Jim M.

 
At 10/17/2005 10:22 PM , Anonymous Anonymous said...

Hi Anthony,

We're so happy to hear that you had such a good day. That should give you much encouragement for future days to come. You have come a long way from May, and we can only pray that each day will become easier for you. God bless you. You are in our thoughts & prayers.

Love,
Aunt Edie & Uncle Rit

 

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