Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, October 10, 2005

Edema Graphed

For the first time in five months, I was able to put on my walking shoes. It was a tight fit, but that is definitely progress.

One of the things I mentioned to Beth the other day was about the importance of tracking your progress. I've been surprised how little I've been consciously aware of how much healing I've been doing over the months. It is only when we take a birds-eye view that we can put a face on the progress (and setbacks) that I've experienced.


This is a graphic representation of my fight with the edema. I started recording my weight each morning over two months ago. By looking at this chart, you can see the effectiveness of the Zaroxalyn, the consequences of not taking the Zaroxalyn, and, well, that right now I'm one skinny dude.

The slope at the beginning is not a mistake -- it was estimated that at its peak I was carrying 40 pounds of fluid underneath my skin. Take my word for it... not a pleasant feeling.

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