Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Sunday, November 06, 2005

Day + 121, "Pull Up! Pull Up!"

Friday was awful. It was one of those days you know would not work out right, and all you want to do is sleep it away. I took two maps and essentially rested until it was time to go to sleep. As a result, yesterday I did feel more energetic. The fatigue subsided for a bit, and the back and leg pains went away.

The drama-o-meter spang forward again this weekend, as there's been another change in how my body is handling the Lasix. Since Tuesday, I've been taking the same dosage, 120mg a day, but at a different time of the day. The purpose of this change was to prepare me for getting back into a work schedule. You see, a couple hours after you take the medicine, you have to go to the bathroom very bad. And very frequently. When I took it at 2 p.m., it was kicking in by 5. I could never make it through a Boston rush hour while on that stuff.

Also, after you do a few bazillion times, your kidneys start to ache a little bit, and you feel miserable. I also couldn't have this feeling while working or driving home -- I just wouldn't be productive.

So, since Tuesday, I've moved it forward two hours, to 4 p.m. This allows me to get through a 'work day' without any problems. However, now my evenings are miserable.

Now, whether or not this change is the reason for my recent issue, I don't know. All I know is that since Tuesday, the medicine has been working extremely good... maybe a little too good. I have lost nearly six pounds in the last three days. And can you believe it, I still have fat feet!

My body feels miserable due to this fast weight loss. I need to take some action to stop this fast slide. Today, I'll be kicking down the Lasix dosage to 80mg, and I will be taking some Pedialyte to deal with the dehydration.

Maybe my kidneys are starting to kick in? Too soon to tell.

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