Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Tuesday, November 08, 2005

Day + 123, "You Breathe, You Smile, You Pee"

Thanks to Carol for my new mantra and meaning for life. We need to spread this message throughout the world, and I am willing to be the missionary. Already, people are spreading the word.








But seriously...

After some rough waves this weekend, I've been experiencing smoother waters since I cut my Lasix dosage from 120mg to 80mg. So far, it seems as if my body is using the lower dosage just as effectively as it had previously. My edema is slowly disappearing from my lower legs and feet. I'm still pumping out a pound or two of fluid each day, but, it seems that I'm getting rid of it more effectively. This morning I woke up and saw the bones in my feet for the first time in months.

Of course, it's still too early to tell what is going on. I'll continue this dosage for the rest of the week and see what happens.

1 Comments:

At 11/28/2005 7:16 AM , Blogger Hafrún Ásta said...

wow I have been reading for some time but now I comment. I'm very proud to know you. If you remember me ofcourse hehe. OZ ??? hehe WEll you are doing a great job there & you are fighting a hard battle & doing it well. I'll continue to read I may not comment often but I'm here.

 

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