Day + 137, Steady As She Goes

Another cold rainy day here in Boston. I guess as long as it isn't turning to snow, I can't complain. Before you know it, the parking lots will be filled with feet of snow.

Today was a followup appointment with Dr. Dember at Boston Medical. This was my first visit to her in capacity as my nephrologist. I'm happy to have her, as she was on my original amyloid team, is familar with the disease, and knows my history.

As expected, there were no surprises. I've gotten better at managing the edema, and there really isn't much more that I can do. As a result, there was no change in my prescriptions. I was hoping that she'd come up with a new drug that would make it all go away, but that was not in the cards today.

It's quite possible that eventually it will improve on its own, but for now I need to shift my focus from reducing the edema to learning to live with it. This is a very long term issue (perhaps for the rest of my life), so I need to just deal with it.