Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Wednesday, November 30, 2005

Day + 145, The Main Event

I received my six-month evaluation confirmation from Boston Medical the other day. I'll be going back on the week of January 23rd for the evaluation.

This is the biggie. One of the benefits of the six-month evaluation is that the doctors perform a bone-marrow biopsy. It's an uncomfortable procedure, but worth it. By going into the bone marrow, you've able to check first-hand the presence of amyloid. No more guessing on blood tests or x-rays. You are finally able to find out whether or not all of the suffering was worth it.

Typically, you get a preliminary blood test at the three-month mark which gives you an idea of how things are going. However, my trigylceride levels were so high that they threw off the results. So I'm in the dark, which makes me a little nervous. I think the worst part is not knowing. Until I find out what the results and prognosis are, I really can't starting rebuilding my life in jest. Of all the pain and inconvenience these last months have given, that is really the hardest part.

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