Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Thursday, December 08, 2005

Day + 153, Gaining

I've gained three pounds in the last three days. Typically, whenever I gain any significant amount of weight, I move into a panicked mode. Since I haven't been able to put on any real weight, I assume the worst and fear that I'm losing the battle with my edema.

However, this time I'm not so sure. I don't feel like I'm taking any more fluid than usual. Usually I can tell by the swelling in my ankles and skins, and while the swelling is substantial, it does not feel worse. So, I'm cautiously optimistic. It's wait and see for a few days.

Team Tony is now being run on 20 computers, and we are now in the top 4500 teams. Our fast rise to greatness has exceed all of my expectations. I'd have a drink to celebrate, but the doctor said I can't. So, instead, here's a toast with a glass of bottled water...

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