Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Thursday, January 12, 2006

Comenzo Webcast

Over on Beth's blog I found an interesting link. It's a webcast that was created last year at a medical conference in Las Vegas.

The webcast is entitled "Amyloidosis: New insights and treatment including autologous stem cell transplant" by Dr. Raymond Comenzo. Dr. Comenzo is well renowned in the medical community for his vast experience and dedication to helping amyloidosis patients. Although I haven't personally met him, I've heard numerous stories of his talent in defeating this disease.

The webcast gives an overview of the disease, and discusses the latest techniques that are being used to combat this disease, including the stem cell transplant (SCT). If you are interested in learning more about amyloidosis but don't want to go through the rigors of reading a 500-page medical journal, this may be your only free ticket.

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Today I started resuming my old dose of 100mg of Lasix. Nothing to report so far, as it will probably take another day or two to discover whether or not I can deal with it.

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1 Comments:

At 1/15/2006 12:12 AM , Anonymous Anonymous said...

thanks for the link

 

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