Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, January 09, 2006

Problems Continue

Since Saturday, I have been feeling a bit off. Although yesterday was a bit better, the mornings have still been horrible. This morning I woke up at 7:30 to go to my first full day of work, and I felt like I was going to die.

To explain how I feel, I first need to give some background. For as long as I remember, I have never been a morning person. My blood pressure runs pretty low, so when I wake up in the morning it is very difficult to get the juices flowing. If I move too quick or exert myself too much in the morning, I will get dry heaves and feel sick. As the day progresses, my blood pressure rises a bit and I can cope with this feeling. By afternoon I'm in control, and the evenings are okay.

For the last few days, I've had a slightly elevated heart rate which does not go down when I relax or rest. As a result, it has amplified my bad mornings to the level which I am basically immobile for the first hour or so. It has also lingered into mid-day, which is reducing my ability to be productive.

I spoke with the lipid nurse over at BUMC, and she doesn't believe it to be a side effect of the new medication I'm taking.

What's strange is that my temperature and other vitals are relatively normal. Despite this issue, there seems to be nothing else wrong with me. I do not have a cold or feel sick.

We'll see what tomorrow brings. I see the doctors for my six-month evaluation in two weeks.

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