Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Saturday, April 22, 2006

Amyloidosis Funding Appeal in Washington

Making their case on Capitol Hill for disease funding


Dozens of disease research champions come to the subcommittee that Regula, Republican of Navarre, chairs to seek a share of the federal government's $873 billion discretionary budget.

Former Capitol Hill staffer Terry Peel, who has known Regula for decades, came with his wife, Ann, who suffers from a rare disease called amyloidosis in which abnormal protein clots squeeze out normal cells and cause organs to fail. He asked Regula to keep language in his funding bill that encourages wider diagnosis of the disease.

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