Omacor: 0 for 2
Last week, I resumed the Omacor again, albeit at a half-dose (2mg/day). Even at this dose, I felt lethargic and miserable. As a result, I have stopped the medication again, possibly for good this time. I'm disappointed in this development, as Omacor is supposed to be very effective at reducing tryglycerides.
Last week marked a new milestone in my recovery: I finally left the nest. That's right: I moved into out of my stepparents, and into my own apartment. I had hoped to wait until my edema cleared up enough as not to be a disability, but since it doesn't appear that that will happen anytime soon, I figured that now was as good of a time as ever.
It may seem like a trivial thing, but remember that I really haven't truly had the sole responsibility of caring for myself since I went in for treatment nine months ago. It really takes time to get adjusted to making your own meals, doing your own laundry, and generally taking on the rigors of normal life.
It's been about three weeks since I started the cardio rehab, and I have found a morning schedule that works for me. But between my business trips and moving, I have not been regular about my appointments. I have noticed that when I exercise and get my blood pressure up, I tend to have less problems with the edema. The edema is slightly better this month, although I attribute that to taking Lasix twice a day instead of once a day. Although I've been able to tolerate the Lasix, at the increased dosages I do feel miserable and bitchy most of the time. Well, more than usual! I hope that next month will be much better, although at this point I am not holding my breath.

1 Comments:
Hey, Tony. I am also 33, and waiting for a diagnosis re: amyloidosis. It has been a long 8 mos. of increasing GI problems and an enlarged tongue that makes me choke and gag. Right now, I am just pushing for answers. Thanks for standing as a positive example of survival and hope. The day will come when the edema is a distant memory. --Laura
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