Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Tuesday, July 18, 2006

Here We Go Again

On Monday afternoon, I got the following e-mail from my doctor:
We have looked at the results of urine immunofixation electrophoresis from last week and the lambda light chain band is more prominent than even the week before. It, however, remains very faint, at the limits of visual detection. Therefore, we do recommend a second stem cell transplant for you.
At least it didn't come as a total surprise. Deep down, I knew that when the results weren't all so rosy, that some sort of additional treatment would be coming down the pike. It's like June 2005 all over again. Between the news, the heat and all of the associated stress, I have become utterly miserable.

There's not much more information to report at this time. I'm in the process of setting up an appointment, so I don't have a timeframe yet.

Like I mentioned in my post last June, preparing for a stem-cell transplant is like managing a big project. You need to determine how long you will need care, and gather/allocate resources to make sure that you are taken care of. It may be a little crazy finding care this time around, as my mother may not be able to stay out here for very long. I'm not panicing yet, but there is still a long road ahead. Although I am very sad about this news, I am thankful for the doctors at BUMC, and for everything that are doing to help stop this awful disease -- despite attempts to prevent them from trying.

I'll post more information as it develops.

5 Comments:

At 7/19/2006 3:05 PM , Anonymous Anonymous said...

Dear Tony - Just wanted you to know my second SCT wasn't bad at all. Maybe because I knew what to expect. I'm keeping up with your progress and I know you'll do just fine. My best to you and Mom. dorothy capsolas

 
At 7/21/2006 4:15 PM , Blogger Rannveig Magnúsdóttir said...

Thinking of you Toni in those difficult times...

 
At 7/21/2006 4:23 PM , Anonymous Anonymous said...

Hi Anthony,
We are all thinking about you during this difficult time. Keep on having faith in God. He does do miracles. I am always praying for you. But, hang in there and we are all praying for your health to improve. Take care and keep on fighting the good fight.

Love always your cousins,
Nickolas and Little Andrea

 
At 7/29/2006 2:43 PM , Anonymous Anonymous said...

Dear Tony..This new development has earned you top billing on my prayer list!!!again:) I have faith that you will make the right decisions for you. Carol F.

 
At 7/30/2006 8:35 PM , Blogger Tony said...

Thank you all for your kind words. I'm hoping that this time will be not so hard. I'm keeping my fingers crossed!

-Tony

 

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