Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, August 28, 2006

Day + 3: No News Is Good News

Our first day at the Comfort Inn has been pleasant so far. I am still doing well with the reduced doses of compazine and decadron, which has allowed me to be much more lucid and independant than I had been at this time last treatment.

We essentially had only a half day over at the clinic this morning - just some standard blood tests, flushing of the cathether, and waiting for the go aheads from the doctors to let me go. We were back walking around the hotel before lunchtime.

I still feel that staying here in a hotel suite, 15 minutes south of the hospital, is still a waste. Especially when you consider I have a nice apartment not that much farther away. But, as the doctor's have warned me, my blood counts have not dropped yet, and come Wednesday or Friday I will hit a low point and not feel so great. So being close may pay off during a bad night.

But for now, I'm just waiting for the "shoe to fall off the other foot." I feel stable, and other than a slight loss of taste, I haven't felt any changes yet.
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2 Comments:

At 8/28/2006 10:46 PM , Anonymous Anonymous said...

Tony, what is going on? I haven't talked to you, and we were supposed to talk.

I know you are going to make it through you struggles, but being able to talk to you would be nice.

Denise

 
At 8/29/2006 8:12 AM , Anonymous Anonymous said...

Tony,

Sounds like this time is a bit less scary (in the sense that you know what to expect) although just as unpleasant...

Thinking of ya, let me know when we can start visiting. Otherwise, maybe some network DOOM if you can think straight.

Hang in there bro!

--Steve

 

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