Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, August 21, 2006

Day -4: Reflection

I tried to make the best of my last weekend of freedom, but it ended up being anticlimatic. About the wildest thing I did was have a fragrant disregard for my restricted diet. Sushi, tacos, chinese food -- if it had salt, I probably was packing it down. I also loaded up on fresh fruits and vegetables, as I won't be able to have them for quite a while. Despite the food orgy, I held up pretty well.

Oh yeah -- on Saturday I shaved my head. Waking up with clumps of hair on your pillow isn't very encouraging.

One thing I also did was to get on the computer and read my blog entries from last year. I wanted to refresh my memory on how my treatment progressed the first time around, as a lot of it was kind of hazy. I totally forgot how I started to drop as soon as I started my chemo. And considering that I get my first dose tomorrow, I'm starting to get a little nervous!

Talking about tomorrow, a lot of things will change. First, I'll have to start wearing the #@?! mask again in public. I also start my medication.

Today we went into the hospital to get my catheter flushed. Fortunately, we were able to find a nurse and get it done rather quickly, and now we get one last day of relaxation before it begins all over again.

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