Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Thursday, August 17, 2006

Day -8: Catheter Insertion

It's been a long day. We made it to the hospital at 7 o'clock this morning, just in time for our appointment. It was one of the usual, "hurry up and wait" days that you experience during your stay here. Even something as simple as getting a catheter installed takes a couple of hours, since you move from department to department. Now is the time to start investing in a couple of good books.

The routine was the same as last year, although this time around I was given a slightly smaller catheter due to the fact that I was not donating stem cells. You are given some drugs intravenously to relax you, then they cut you up and slip in the catheter. The process was not too painful since you are quite numbed up. When they are finished with you, you are sent back to the recovery room for a couple of hours to make sure everything is okay. You are doped up anyway, so you are in no mood to complain.

Just out of the operating room. I don't remember my mother taking this picture.

I was quite tired for the remainder of the afternoon. It's been only an hour or so since I started to feel like myself again. For tonight, it's a night of rest and relaxation (and probably some Tylenol as well).

A decision has been made on my chemo dosage. It was rather anticlimatic, as the doctors have made the decision for me. At the meeting yesterday afternoon, they decided to keep me on the protocol and give me 140 this time around. They couldn't justify making an exception for me, even if I am a charmer.

The chemo schedule has been pushed ahead one day, to next Tuesday and Wednesday, with my stem cells to be given back to me on Friday. I have been given tomorrow off to enjoy my final weekend of freedom. At least for a while.

5 Comments:

At 8/17/2006 6:35 PM , Anonymous Anonymous said...

Dear Anthony and Patty,
Well it looks like you are on your way. My thoughts and prayers are with you both. This time you will beat this disease. Pat good luck with the driving. Love you both.
Andrea

 
At 8/18/2006 1:49 AM , Anonymous Anonymous said...

Tony,

My good wishes and prayers are being sent across the country from California for you and your mother. I intend to send out an email to my friends telling about you and asking them to remember you in their thoughts.

The Best, Sue Keith

 
At 8/19/2006 2:52 PM , Anonymous Anonymous said...

Tony-
so sorry to hear that you need another round of treatment. Please know that my thoughts and prayers are with you and your mom every day. Tell Patty that I am sorry I didn't get to give her a good-bye hug!
Anette (from Ellis Hosp.)

 
At 8/22/2006 7:40 AM , Anonymous Anonymous said...

Anthony,
my prayers and thoughts are with you today as you go for your 1st round of kemo. Stay strong.
With love Aunt Andrea

 
At 8/22/2006 11:21 AM , Anonymous Anonymous said...

Tony,

Best wishes to you. My thoughts and prayers are with you. Full remission is in your future.

God Bless,
Roe

 

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