Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Tuesday, August 08, 2006

Storm Approaching

The clouds are coming in. We're now within two weeks of my admission to BUSM for my second stem-cell transplant. With each passing day, my mood becomes more somber. The benefit of knowing what to expect is also a burden, for I know that there is another long battle ahead. It's hard to keep a smile on your face knowing that the next few months will be very unpleasant.

One of the things that I regret not doing prior to my first transplant was not stuffing myself with my favorite foods prior to starting treatment. I wasn't really able to do this prior to my first transplant, as I had a tooth pulled just before I began the treatment, and I wasn't able to eat anything solid for a couple of days. This weekend, I loosened up my diet a bit, and ate out at a couple of my favorite places. Ate some sushi, munched on some cheese and crackers at a party. As a result, I gained three pounds of fluid in my legs. Sigh. It seems that no matter how I try to enjoy myself, I seem to suffer in some way.

On a bright note, I got an e-mail from the hospital stating that my insurance company has improved the second transplant. This is one less thing I'll have to worry about, and I am very thankful for that.

There have been gaps in my postings as of late, but you'll find that once I'm admitted next week, there will be a flurry of activity. Stay tuned.

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