Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, October 30, 2006

Life at 33 RPM

Another slow, eventless month done and over with. Based on my sophisticated calculations, I am now into my third month or recovery. At this point, I was hoping to be up to full strength, running five miles and sporting a full-set of hair like a chia pet, but alas, that was not meant to be. As a matter of fact, I really haven't had any increase of stamina in the last few weeks. And come to think of it, not much change on the top of my head either.

Can you believe I'm still trying to determine my proper dosage of water pills? I know that I definitely require less medication than this time last month, but I'm discovering that I am far from ready to get off the pills completely, which is my goal. Of course, I'm still taking quite a bit of a dose -- about 40mg of Lasix once a day -- but this is much less than the dosage before my second treatment, which was 80mg twice a day.

Other than that, nothing new that to report. That's how it goes. I'll be watching my scalp for hair growth, and promise you'll be the first to know. (Well, second to know... you know what I mean.)

3 Comments:

At 10/31/2006 11:15 AM , Blogger Coffespaz said...

Well, let's see.

Today is Halloween, so the lack of fuzz on the scalp could be conducive to wearing a riotous hat of some kind while shopping at the local Shaw's.

Then, you can use the incoming coldish tempuratures as an excuse to develop a whopping collection of hats and caps with which to wow your friends and neighbors.

Just a thought... ;-)

 
At 10/31/2006 11:36 AM , Blogger Tony said...

Please, no more funny hats...

 
At 11/21/2006 10:37 AM , Anonymous Anonymous said...

Tony... You could not be in a better place than Boston for your disease. The Boston Medical Center has been doing the best treatment for amyloidosis in the country. A doctor Martha Skinner has headed the research.

 

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