Patient's Day Reminder

Just a reminder to all amyloidosis patients and caregivers in the area -- there will be a Patient's Day at the Boston University School of Medicine on Saturday, November 4th. Already 100 patients have signed up to meet and great some of the most prominent doctors who are treating this disease. It's also a great way to meet and learn from others, especially on how to deal with some of the symptoms of the disease, such as nephrotic syndrome and neuropathy. Assuming my body is up to the task -- I plan on being there.

I've felt pretty good during the last few days -- save for a dull pain in my right kidney. (My left kidney never acts up -- it's always the right one.) I've also been a little drained and light-headed, which usually means that I am taking too many water pills. This is wierd, since I've been taking the same dose for weeks. Perhaps my kidneys are improving again? I'm cautiously optimistic. I'll know for sure in a couple of days, as I re-regulate my dosages.