Amy Gets Air Time

As with any rare disease, the biggest challenge is getting the word out to people (especially doctors) what the disease is and how to test for it and treat it. For the most part, we have been unsuccessful at getting news articles or health segments on TV warning people about the disease. Some people sarcastically say that it would have to take the illness of a famous person in order to bring it into the public eye.

At the Amyloid Patient's Day in Boston earlier this month, Lois & Richard Singer made an announcement that they were going to use the mention of amyloidosis on FOX's series House as a way to get a medical segment aired about the disease on a local TV station. They made several phone calls with news afflilates in their area just to squeeze in a small piece about the HOUSE episode, and the disease in real life.

It appears that they came through! Lisa Cooney Carter, wife of the late Lance Carter, has posted a link to the small medical segment on FOX News 5 in New York. You can watch it here.