Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Wednesday, November 08, 2006

Patient Profile: John Moore

This is the first of a number of "patient profiles" -- short stories about other amyloidosis patients that I have come into contact since I began treatment for this disease in the summer of 2005.

The first patient that I came into contact on a regular basis was Jack Moore, a CPA from Sacramento, CA. I had the pleasure of meeting Jack at Boston Medical in July 2005 while waiting for our appointments. Both of us were admitted for high-dose melphalan / stem-cell transplants. Throughout the treatment, we would always go into each other's recovery rooms, to check up on each other. John was two weeks ahead of me, so it was great seeing how he was doing, as it gave me an idea of what to expect in my recovery. I really grew to really like Jack due to his amazing energy and infectious personality throughout his treatment. Even as his kidneys began to fail and being forced into dialysis, his attitude was always optimistic.

Well, that optimism paid off -- several months after his transplant, the damage to his kidney began to reverse, and he was removed off of dialysis. Today, he is doing great, and not only has he had a complete response to the treatment, his kidneys are now functioning normally again!

Pictured (left to right): William Hale, Jack Moore, yours truly

Jack is yet another "success story", and an inspiration for amyloidosis patients everywhere. You can read the diary he wrote during his treatment here.

1 Comments:

At 11/09/2006 8:33 AM , Anonymous Anonymous said...

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