Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Sunday, February 11, 2007

Boston Support Group Meeting

A reminder for all patients and caregivers in the Boston area that the Boston Amyloidosis Support Group meeting will be taking place next Saturday, February 17th, from 10 a.m. - 2 p.m. Same location, different time. I'd like to stop by, but I'm trying to take a break from the hospital visits for a while. Don't worry, I'll be meeting my quota in the next few weeks.

For those of you in other areas... you should check the Amyloidosis Support Group web page for support groups in your area. They are located all over the country.

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2 Comments:

At 2/15/2007 2:34 PM , Anonymous Anonymous said...

Ah, darn. I was hoping we'd finally get to meet! Well, I might have to work a bunch of hours Saturday... But this would be my first opportunity to sit down with other amyloid patients.

My eval isn't until April; I'm hoping that the bone marrow aspiration goes better this time. I just want to hear them say I'm doing *great*, and FLCs are negligible, for example.

I wasn't aware of the connection between BP and mood. Interesting! I got tired of having excessively low BP and modified my treatment accordingly.

NICE CHAIR! Woo-Hoo! I'm envious. But do be sure to get up and motorvate your body, Tony.

Best regards,
paz

 
At 2/16/2007 3:06 PM , Anonymous Anonymous said...

Thanks Tony for the plug. Everyone benefits. Hope youare doing well and hope to see you at a meeting soon. Don't forget that Ken runs the socials on Tuesday with his new bride, Clara.
Take Care,
Muriel
Amyloidosis Support Groups
www.amyloisosissupport.com

 

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