Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Friday, April 20, 2007

Second Chances

So far April has not been a month of much news and excitement. The salivary gland issue came and went, and whether it will make an encore appearance is anyones guess. The edema has not significantly changed in the last few weeks, although it seems to be a little tamer than in the past.

After a month of being put on the Crestor, I went in to Boston Medical to have some blood work done to see how the new drug is doing. I'm pleased to announce that it has significantly cut down my cholesterol and triglycerides to their lowest levels since I was diagnosed in May 2005. The triglycerides are again in normal (albeit high-normal) range. I'm making good progress here, although I would expect so -- I'm on three different lipid drugs, fish oil and a custom diet. The doctor is happy with the results, and since my liver hasn't died yet, he's doubling my Crestor dose until I get the cholesterol under control.

I was very sad to hear that our amyloid friend Philip will need to go in for his second transplant in the fall. Like me, he only got 9 pins down... now he just needs to go in for the spare. Hang in there, Philip! You are in my thoughts.

1 Comments:

At 5/01/2007 3:31 PM , Blogger Coffespaz said...

HI there, haven't seen you post in a little while so I wanted to check in and see how you are doing.

 

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