Summer Schedule
Life and work has been kind of crazy recently, which hasn't given much extra time to do anything, especially providing updates to the blog. And to be honest, I've tried to put as much distance as I possibly can from my experiences over the last two years, with the unrealistic hopes that I can look forward and return back to the normal life I had before I got sick. This has really conflicted me, as I feel that it's important to share my experiences with others who may find themselves in this situation. The result has been an inconsistent level of new posts. But like I've said before -- when there's no news, it's good news!
For those keeping score, it's been 264 days from transplant #2, meaning that I'm nearly finishing my ninth month. (God, that last sentence sounded like I was bearing child.) I think most of the effects from the chemo such as the "chemo brain", fatigue and low stamina are nearly gone, although I know that I'm still not 100%, since I still tend to be forgetful, and have this unhealthy obsession with reality shows. Hopefully both will clear up in the future.
The doctor's schedule is kind of weird this time, since I did not have a 6-month evaluation. Instead, I've had quick visits with my cardiologist and nephrologist on a semi-regular basis, with a complete checkup at my 1-year mark. Here's the upcoming schedule over at Boston Medical:
- June 5: Meeting with nephrologist to check my protein leakage and other kidney functions. I will also probably get some blood work to check my lipids. Gotta check those lipids, y'know?
- June 28: Meeting with the cardiologist. Since I probably will have submitted labs earlier in the month, I'm not sure what purpose this visit will serve, other than filling his pockets and pissing off my insurance company even more.
- August 20-22: The main event. This is my one-year evaluation over at Boston Medical where they will perform every test known to man on me. It's sort of like being a lab monkey, except that the lab monkey usually gets a banana for good behavior.

2 Comments:
Hi Tony
My name is Marion. I am 67 years young. I have amyloidosis with kidney involvment. I have had a SCT in Dec./06. I have only 1 kidney because I had renal carcinoma in the other one & had it removed 2 yrs. ago. I am doing pretty good except, had to go on dialysis 3 times a week due to kidney failure after my SCT.
I have browsed through your blog site & am curious as to why you didn't have to go on dialysis.
I can identify with so many of your problems. I got so sick of lasix & huge swollen angkles & legs. I have a blog site also...
rickertcancer.blogspot.com. My 12 yr. old grandaughter set it up for me. Her namce is rickert & she thought I had cancer.
I would be interested in hearing from you sometime. e-mail
marion.raddatz@sympatico.ca
Hope you have healthy days ahead!!
Marion Raddatz
Tony,
I am totally thrilled to see that you have come so far...hard to believe that only nine months have passed.
Enjoy your holiday weekend, eat some bananas, and look forward to the up-side of your experiences. You are doing a wonderful service to your friends with this blog, and it is terrific that you don't need to post as often because things are going well!
Cheers!
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