Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Monday, July 23, 2007

Amy in the NYT

Thanks to Beth for posting that our friend Amy (well, ok, maybe not a friend) got some web-time in the New York Times.

Robert Bass, a 53-year old conductor, performed in Switzerland tonight. What's the big deal? Mr. Bass has amyloidosis and is recovering from a heart transplant in preperation for a stem-cell transplant next month. The article discusses the disease, and how it is often undetected until it is usually too late. In Mr. Bass's case, he was bounced from doctor to doctor until he finally found someone who was familiar with the disease. By this time, his heart was so damaged, he needed a transplant to survive. Unfortunately, this scenario is very common with this disease.

Its stories like this that make me humble and feel guilty when I think about how I gripe about my issues, which are petty in comparison.

Labels:

0 Comments:

Post a Comment

Subscribe to Post Comments [Atom]

<< Home