Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Saturday, August 25, 2007

Happy Anniversary To Me

Well, I knew that it was going to come sooner or later. Today, of course, is my one-year anniversary of my second stem-cell transplant. Doctors use the date you receive your stem-cells back as the metric to chart recovery and survival from this disease.

One Year AgoI'm afraid to say that I have been extremely disappointed in my health condition now that I've had a whole year to recover. While some of the issues I experienced during the last few days have lessened somewhat, I am still burdened with a lot of fatigue. I felt much better at my one-year mark from my first transplant, and to be honest, much better 6 months ago. I've tried a lot of different things to deal with these problems, but I have not been totally successful. Hopefully at my evaluation next week, they will be able to find an explanation.

A couple of readers wrote me regarding my schedule next week, and when I would find out any news. I will be going in for a bunch of tests from Aug 27th - Aug 29th. I'll probably get a peek at some stuff on Tuesday, some preliminary results on Wednesday, and a full result on Friday afternoon. Of course, I'll report everything as soon as I find out myself. Wish me luck. I'm sure the insurance companies are licking their lips in anticipation.

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