Fall 2008 Followup

Hi everyone! As you probably can see, I have stopped blogging and "moved" the blog to another web address.

I did this for a couple of reasons. However, the main impetus was a comment given to me regarding patients and blogging. I've been told that insurance companies can (and will) use any information that a patient voluntarily enters on a web site as evidence, and can be used for determining pre-existing conditions. Because I wouldn't be able to report any "negative" updates, I've decided to remove the blog altogether. However, I have decided to keep up the story I have written so that other patients and caregivers may learn from my experiences.

In the near future, I'll be updating the links on the site (some are outdated) and make some other tweaks to make information more easier to find.

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Oh yeah... I promised that I would give an update after my two-year evaluation. Well, I went back late last month, and did the whole "evaluation" routine over again -- the blood tests, chest x-rays, doctor consultations. I'm pleased to report that the treatment is continuing to hold, and I am still showing a complete response. I am in the process of returning back to the energy level prior to when I got sick. Whether or not I will eventually be able to do so remains to be seen.

Now if I can only get off of all these drugs... :)