Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Sunday, August 27, 2006

Day + 2: Holding Steady

I was pleased when I woke up this morning, having not needed to take the Ativan that I regularly need to sleep through the night. It's true - I did wake up at 4am, but it was due more to my mother's snoring than an upset stomach.

So far, my strategy for taking only the bare minimum of drugs to get by is working. I still believe that a lot of the 'inner hell' that I had lived through during my last treatment was caused by over mediciation. My unpleasant evening on Thursday confirmed these suspcisions. As a result, I will try to cut down on dosages whereever my doctors allow me to.

This morning is unlike any typical, lazy Sunday morning, although I must admit I have had better days! Still, my major complaints are not pain or nausea at this point -- just boredom. This is absolutely fine with me. I am still a little foggy in the head, but it's not too bad.

My mother and I leave for the hospital for some more aranesp shots in a few minutes -- then we will come back to the apartment for some final packing and, then, admission into the hotel, which will be my home for the next 7-10 days.

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