Walking The Thin Man

In May 2005, I learned that I had developed amyloidosis, a rare protein folding disease. This is my story.

Sunday, July 31, 2005

Day + 23, The Young and Restless

This has been the first weekend I've had off since before the beginning of my treatment. Surprisingly, I haven't been excited about it. At least at the clinic, I am socializing and doing something. Inside the apartment, I feel isolated and, well, bored. My energy level is not at the point where I feel like going anywhere. I do not look forward to the day when I am released from the clinic and stuck in the apartment.

Healing is a very slow process. I have come back from the dead in quick order, but now begins the process of recovering the full energy and health... which I've learned will take a long time.

But there are improvements. For example, my sense of taste is coming back. Orange juice tastes like orange juice, and not like paint thinner. It's not perfect, but getting there.

No luck on the hair, though. (sigh)

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